Sarcoidosis Outreach and Support Of Alabama
Discovering A Cause
is Hope For A Cure
What Is Sarcoidosis?
Sarcoidosis is an inflammatory disease that can affect any organ in your body. It causes heightened immunity, which means that a person's immune system, which normally protects the body from infection and disease, overreacts, resulting in damage to the body's own tissues. The classic feature of sarcoidosis is the formation of granulomas, microscopic clumps of inflammatory cells that group together (and look like granules, hence the name). When too many of these clumps form in an organ they can interfere with how that organ functions.
Sarcoidosis can be fatal.
Who Is Diagnosed with Sarcoidosis?
Sarcoidosis can affect any age, race or gender. More people are diagnosed between the ages of twenty to forty than any other age. There are more African Americans diagnosed than any other race.
It is more likely that if someone that has been diagnosed with Sarcoidosis that a close relative will be diagnosed.
Therefore suggesting that genetics play a role. However researchers have not discovered a genetic link.
What are Sarcoidosis symptoms ?
Symptoms varies with individuals diagnosed . Fevers, rash, weight loss, night sweats, fatigue , cough, shortness of breath and inflamed lymph nodes . These are just some of the symptoms. Other symptoms occurs with other organ involvement
Some people may never know they have Sarcoidosis, they may never have symptoms. Symptoms in some will disappear within two years without treatment, while others will have a life time of symptoms. When more than one organ becomes involved and symptoms are not eradicated Sarcoidosis becomes chronic systemic Sarcoidosis.
A lung transplant may be the answer to those that has severe lung damage. Sarcoidosis can be fatal.
No one knows the reason that Sarcoidosis affects individuals differently.
How is Sarcoidosis diagnosed ?
Sarcoidosis is a complex disease that can go years without being diagnosed, because it mimics other diseases.
Sarcoidosis is diagnosed through chest x-rays, scans and biopsy. Often other test are required to check for other organ involvement .
When diagnosed with Sarcoidosis it is important to find a physician that specializes in Sarcoidosis . You need to have a team of physicians that are willing to work together. You are the most important part of the team, Make sure that you have a physician that you can relate to, a primary care physician that is knowledgeable in Sarcoidosis or is willing to learn of the disease.
This information was taken from different sites from the internet and from the knowledge what I have gained myself after being diagnosed with Sarcoidosis
There is limited funding available for research for Sarcoidosis. There needs to be more funding made available for research.
There needs to be more awareness.
Please help by telling others, donating and holding fundraisers.
Sarcoidosis Outreach and Support of Alabama Inc.
Have you registered for the patient registry?
The Foundation for Sarcoidosis Research has a patient registry, until now there has not been no actual database for those diagnosed with sarcoidosis.
Anyone anywhere is invited to register. It is time we are counted, We each can make a difference.
If you or someone you know have been diagnosed with sarcoidosis go to the link below and register or go to